I had the BEST weekend (mind you I seem to be starting the majority of my sentences with “I had the BEST…” recently).
A had clients to see/business to do up in Manchester, and for the first time, I was well enough to go with him. As we planned the weekend, scheduling in when he would be busy working and where I would go and what I would be doing, I began to get quite nervous; I haven’t been an independent adult before really, not since my first year at Uni anyway. In recent years I have always had people around me to help me and to accompany me, and have never really been anywhere I don’t know, as hypothetical problems would arise such as “what if I get into difficulty breathing or get tired? What if I run low on oxygen? How can I get back quickly if I am in unknown territory?” Due to these questions being fairly foreboding and unanswerable, I tended not to stray to far from familiar ground. Not to mention of course the mandatory “stay two hours from Harefield” rule which penned me in somewhat.
Anyway, I was most definitely scared of going, just a general fear of the unknown and of behaving in an adult fashion (something I am really not accustomed to doing). The drive of people I would see up there and things I would do however was enough to override this (along with A’s reassuring words of “don’t be silly you’ll be fine”) and we set off “oop North”. Our first stop was Liverpool. The first night we stayed at a beautiful Hotel, which overlooked the huge expanse of the local park, green as far as the eye could see and uninterrupted except for the odd early morning dog walker or jogger. The next day I joined my friend, an ex-flatmate of mine who knows me so well it’s annoying and who now studies in Liverpool. It was fantastic to get to actually see her life up there, what she is up to, meet her friends, go out to some of her local haunts…all things I never thought I would be able to do.
On the Saturday, I rejoined A, and we headed over (notice I use the word “over” instead of a geographical direction as I don’t have a clue where abouts I was in the country nor where I was headed) to Derbyshire, to visit my granddad, who is one of my heroes in life, and who incidentally is 91 and just got a mobile phone. It was an absolutely glorious day, the sun was shining and Derbyshire is just so picturesque. We sat basking in the warm sunlight and talking until late afternoon, when we set off back to Manchester for the final leg of our journey.
We stayed with A’s friend (I was last able to visit him over 4 years ago) and I was spoilt rotten and treated like a princess - two things which I am quite comfortable with. On the Sunday I was able to meet up with Mr Pimpdaddy of pimpthatsnack fame, and his lovely lady, both who have been incredibly supportive to me and the Live Life campaign (see people are just awesome, I know I say it all the time but it’s true). This meeting resulted in the taking of muchly photos near a tree which was adorned with paper flowers and butterflies (I liked the tree and insisted that all pictures be taken with it included.). they dropped me off on the main road, and I wandered back towards the flat. I hope no one was watching me because I may have looked like a madwoman; I was beaming from ear to ear and laughing to myself, just the sheer overwhelming pleasure of being alive and being able to have all these experiences. Life isn’t about the huge stuff you know, major aims, aspirations, ambitions…those are important of course but it’s all the little bits, the moments which are happening right here, right now, that make it what it is.
After a truly spectacular weekend, it’s back down to earth with a bit of a bump today as my lung function, which has been beautifully behaved so far developed a mischievous streak and dropped by over 10% today. Dutifully, I telephoned Harefield and have been asked to come up tomorrow to be checked out.
Organ donation week 2017
2 weeks ago